Spina Bifida is a condition that affects the spinal cord and can cause reduced sensation in certain areas of the body. This can make daily activities more difficult, but there are strategies and resources available to help individuals with Spina Bifida manage their symptoms and improve their quality of life. In this post, we'll explore some of these techniques and resources.
Understand the Causes of Reduced Sensation in Spina Bifida.
Reduced sensation in individuals with Spina Bifida is caused by damage to the spinal cord and nerves. This damage can occur during fetal development or during surgery to correct the condition. The severity of the reduced sensation can vary depending on the location and extent of the damage. It's important for individuals with Spina Bifida to work closely with their healthcare team to manage their symptoms and prevent further damage.
Develop a Sensory Routine.
Developing a sensory routine can help individuals with Spina Bifida manage their reduced sensation. This routine can include activities that stimulate the senses, such as using textured objects, listening to music, or taking a warm bath. It's important to work with a healthcare professional to develop a routine that is safe and effective for each individual's specific needs. Additionally, incorporating regular physical therapy and exercise can help improve sensation and prevent further damage.
Use Assistive Devices and Adaptive Equipment.
Assistive devices and adaptive equipment can be incredibly helpful for individuals with Spina Bifida and reduced sensation. These devices can include things like braces, crutches, wheelchairs, and specialized seating to help with mobility and prevent injury. Additionally, there are a variety of adaptive equipment options available to help with daily tasks such as dressing, eating, and grooming. Working with a healthcare professional or occupational therapist can help identify the best assistive devices and adaptive equipment for each individual's needs.
Practice Good Skin Care.
Individuals with Spina Bifida and reduced sensation are at a higher risk for skin breakdown and pressure sores. It’s important to practice good skin care to prevent these issues. This includes regularly checking the skin for any redness or irritation, keeping the skin clean and dry, and using specialized creams or ointments to protect the skin. It’s also important to avoid prolonged pressure on any one area of the body, and to change positions frequently throughout the day. Working with a healthcare professional or physical therapist can help develop a personalized skin care plan.
Seek Support from Healthcare Professionals and Support Groups.
Living with Spina Bifida and reduced sensation can be challenging, but seeking support from healthcare professionals and support groups can make a big difference. Healthcare professionals can provide guidance on managing skin care and preventing complications, as well as offer resources for adaptive equipment and assistive technology. Support groups can provide a sense of community and connection with others who understand the challenges of living with Spina Bifida. They can also offer practical tips and emotional support. Don’t be afraid to reach out for help and support – it can make all the difference in managing reduced sensation and living a fulfilling life.
http://www.nhs.uk/conditions/spina-bifida/symptoms/
http://www.cdc.gov/ncbddd/spinabifida/facts.html
http://www.bladderandbowel.org/associated-illness/spina-bifida/
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